A Way to Help

Hi Everyone,

I just wanted to post this link on here:

www.pmpcure.org

This is a new foundation dedicated solely to raising funds for reasearch dedicated to finding treatment and a CURE for PMP. PMP is considered an "orphan disease", meaning it is very rare, and it is a part of the National Association of Rare Disorders (www.rarediseases.org). For a disease to be considered rare, it usually means that there are less than 200,000 cases in the United States. Because this disease is so rare, there is very little, if any, federal funding or National Institute of Health funding for research into a cure.

Prior to the forming of this group, there was no centralized PMP research foundation. This relatively brand new group has a goal of raising at least $100,000 by the end of March in order to award their first grant to further research, and a goal of at least $1,000,000 within the next 5 years. The research being done now is not sufficient for the challenges we face, and this group is the best thing to happen so far to research into this type of cancer.

We found out about this group through the PMP Bellybutton Club--an online community of caregivers and survivors. The board of directors is being presided over by members of this group, and it is an IRS designated 501(c)3 charitable organization.

Another cool thing is you can keep track of the goals online---right now the group is at $81,865--getting close to that $100k donation. You can also just go on to join their email distribution list to keep updated on what progress is being made.

I hope everyone is doing well! Doug and I continue to anxiously await springtime (Doug more than me, I think he's already played a few rounds of golf in his head!). We have a busy few months coming up, and are looking forward to some warmer and healthier times ahead!

Thanks for taking the time to read this quick post.

Love, Lindsey